Traveling with Ulcerative Colitis: The Ultimate Packing List

02.10.2024 - 01:35 / cntraveler.com

Exploring new territory can be inspiring and enlightening. But for the approximately 750,000 Americans who have been diagnosed with ulcerative colitis (UC), being away from home—and a familiar bathroom—often feels riskier than flying standby.

We’ve all had that feeling of, I really have to go. However, folks with UC might experience this sensation several times during a day—and it often comes on without warning, says Will Bulsiewicz, MD, a South Carolina gastroenterologist and the best-selling author of Fiber Fueled. This factor, in tandem with other uncomfortable symptoms, can mean that traveling may be extremely anxiety provoking. Luckily, a little planning can go a long way.

“There’s no such thing as a cure for UC. But you can reach clinical remission, during which the condition is not active, which is exactly where we want to be at the time of travel,” Dr. Bulsiewicz says. Ideally, you should establish your travel dates well in advance and then collaborate with your gastroenterologist for a personalized treatment plan so your condition will be in remission come trip time. But even if symptoms are still present, that doesn’t mean your plans must get derailed—you just need to pack accordingly.

Dr. Bulsiewicz and Andrew Moore, MD, a Chicago gastroenterologist with Endeavor Health, recommend stocking a carry-on with things like your insurance card, prescription UC medications, and an I Can’t Wait card, which allows access to employee restrooms—by law, in many states—if public ones aren’t available. In addition to these must-haves, there are other non-negotiables you might consider. CN Traveler spoke to jet-setters living with UC to get the scoop on their vacation essentials. Here’s what they recommend adding to your packing list.

If you’re going to the bathroom a lot, having great-quality toilet paper is a necessity. But not all hotels have the best options. If you know you’re particularly sensitive, pack a roll you know you like or grab one or two near your accommodations.

Not into the idea of bringing your own toilet paper? Pack some moistened towelettes. One of the frequent travelers we spoke to said she always brings them, especially during flare-ups, because they’re more gentle than standard toilet paper. Dr. Moore suggests seeking out hypoallergenic options designed for sensitive skin, which are usually unscented and alcohol-free, as these compostable wipes are.

Staying hydrated is a must if you have UC—especially if you’ve had a colectomy or are amid a flare. That said, a reusable water bottle should be on your list—and don’t be afraid to ask for it to be filled in-flight or at a roadside restaurant. If you’re particularly prone to dehydration or traveling somewhere hot, it’s also smart to